Wit… That night when I went to bed I experienced a very strange sensation which I thought may have been either reflux or a heart attack. I hope someday I can let go of these feelings that I need to watch him so closely and just let him live his life. You can take steps to lower your risk of getting a … As I cannot walk (just coming out of Aircast) really beyond 80 yds without developing serious limited breathing issues, my doctor is worried about Chronic Fatigue. Again, thank you for just taking the time to read my story. Also, if you aren't feeling well work with your doctor to get better. I’m going to demand it just to know, I have fear that while in the earliest staggers f recover6 I may have overdone i5 and thrown more clots . What I had to do is to learn the difference to heavy breathing during exercise and gasping for breath and know when I was on the verge of entering into gasping. That was negative with an abnormality (?). I tested positive for heart disease. On warfarin for life now. I hope that this PE will be my only clot, but, time will tell. I was just diagnosed with this condition about 4 weeks before the PE. The pain in my chest surprised me. The pain became so bad for him that he couldn't walk to the kitchen without being out of breath. 10 months later he is still on 9 to 10mg of warfarin, he's still pale and tired and it feels like he will never get better. Had to fire my Rheumy bc of her attitude and lack of knowledge about the drugs I'm on. Fifty-seven patients (45%) were diagnosed with deep vein thrombosis, 48 (38%) with pulmonary embolism, and 21 (17%) with both. My GP tells me it get better as time goes by but that I will have some set backs on the road to recovery. Another trip to A&E the same day and they put Pete on the blood thinning injection and booked him in for an ultrasound a week later on his leg looking for a DVT. My wife refused to take me home so the Dr. called emergency and had me admitted. This content is accurate and true to the best of the author’s knowledge and does not substitute for diagnosis, prognosis, treatment, prescription, and/or dietary advice from a licensed health professional. No matter how much i breathed I felt dizzier and dizzier. My blood level at 2,1 is OK and the future tests for the correct level will continue until the time when I will finally assume room temperature, (which I hope fro a few more years.) Live with intention and appreciate your body. You are an inspiration to who have had PE or may have it in the future. I am finding that colds and other respiratory infections hit me harder and for a longer period of time. The great thing is, the fatigue is getting better every day. However, prompt treatment greatly reduces the risk of death. Now, I sleep 9-10 hours a day. I met with surgeon (he removed my gullbladder several years ago) and he will remove my lipomas and take a look around my abdominal area via liproscopic surgery. It does create a certain anxiety, the aches, pains, cough. I left with an INR of 1.8. I never knew for sure where that line was. Dr. Says not side effects of the medication I am on...Xarelto. Happy to be alive. Normal PFTs (while sitting), negative cardiac stress test though told at the end I had a VERY POOR exercise tolerance. Recovery from a pulmonary embolism often begins in an emergency room or an emergency squad. Lena Welch (author) from USA on April 22, 2014: PEs can be very difficult to diagnose. Maybe clots can arise from strained or overworked muscles? We all seem to recover at a different rate. Symptoms of the embolism will come and go for a long time after the embolism is found and treatment is initiated. As of now- months later I still can't walk up a trail 50 yards without my o2 dropping. Dealing with bouts of depression. The patient will be started immediately on blood thinning medication. First I managed to walk less than 100 yards before losing my breath and collapsing on the ground. I am mildly autistic and sometimes it takes a while for me to process information. He directed us to a bed and told Pete not to move around. People need to know how arduous the recovery can be! Was told most likely would not make it alive. I am newly released and an sure will be back over and over again when in need of reassurance. After surgery 40 yrs ago had a PE. I found recovery to be a very slow process....Now, nearly 18 months on and I'm pretty much back to normal but still get out of breath sometimes and get little niggly chest pains. Husband made me go to ER. If the patient finally has an answer to mysterious symptoms the diagnosis may be a relief. I'm exhausted all of the time. I am wondering what other studies have found. My vitals were fine and I was safe. When I got home and in to see my Dr., he was puzzled. It should be fine. follow up is in another 2 weeks. Since, I have had a cascade of bizarre symptoms. a) Has anyone had blood in their sputum? I do not have any open sores, scrapes, or scratches. I am only 52. No difference was detected between rivaroxaban and the I want my life back and will prevail. If you are diagnosed with a PE you are one of the lucky ones. I had a catheterization procedure where tPA was dripped directly into my lungs for two days. I'm awaiting tests as the PE was only 4 weeks ago. I stuck out my arm and immediately went back to sleep. I’ve been to the er several times because of chest pains and they ran lots of blood tests and did x rays, I was told everything was normal. After the clots in my head reabsorbed, I was left with a bruit (whooshing sound in my head). I have 4 daughters and was able to see 2 graduate college, 2 weddings and am hoping to experience many more of life's joys in my future. But no one prepares you for the mental part of this decease. Within an hour, Pete was blue lighted by ambulance to the Royal Free Hospital in London. Either way, those with minor embolisms may be lucky enough to return to work a week or so after discharge. I decided to change our doctors as Pete had been there and they would not help him. I am only a week past my embolism and still pretty scared. I would love any feedback on chest sensations if anyone else has experienced them. I've gone too far and my recovery from these setbacks ran from 4 days to 10. My friend thinks I am an evolving life form! So feeling hopefull for the all clear when go for my check up later this month. I dealt with severe total body pain daily up until a few months ago, & that has gotten much better with a supplement called Juice Plus. That's when I was told I had PE. Both chronic and accute. Three weeks later I was in hospital again, with a similar but different episode. I found another. Was in a wheelchair for 9 months in a nursing home. I was 61 years old at the time and in very good health for an "old" person. I ache all over, but it's not debilitating--- I swell very easily and have had issues with swelling my entire life (with no known cause-BP was always great). Seek immediate help if you are experiencing a medical emergency. I was discharged a week ago from the hospital. it is a vicious cycle between pumped and ready to go and then after a short time feel frustrated and exhausted because im holding everyone up. Posted I have had my year anniversary come and go. Gasping is my term for breathing harder and faster than what ordinarily would be expected. One week after undergoing laparotomic sigmoidectomy for diverticulitis, our patient started to experience … If you take too little warfarin you are likely to develop blood clots. Not knowing how long and successful my recovery would be. WHAT? A pulmonary embolism is when a blood clot lodges itself in the lung or lungs. This resulted in part of my lung dying. This will give you a lot more freedom and will be a large step in your pulmonary embolism recovery. I will get through this. If the patient enters under extreme duress, it can be a very scary start to recovery. Obviously very weak due to time spent in hospital for colon removal and then PE. It was successful, and now I am on blood thinners for the rest of my life. Because I was pregnant, I literally did not notice any symptoms of PE. Went back to the GP with the results and was sent immediately to see a Respiratory Consultant. If you're on a load of meds including antibiotics and your docs need you to be on warfarin get blood work checked early and quickly. While I sat there with my wife discussing what was going on, honestly I was in tears thinking I was dying (I even wrote my wife a farewell letter just in case!). I’d reall6 like to have another ct scan done to see if my clots have resolved, but drs have said it’s no5 usually the way they do it. 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